TY  - JOUR

T1  - The Challenges of Living with and Caring for a Child or Children Affected by Neuronal Ceroid Lipofuscinosis Type 2 Disease: In-Depth Family Surveys in the United Kingdom and Germany

JO  - Journal of Inborn Errors of Metabolism and Screening

UR  - http://dx.doi.org/10.1590/2326-4594-jiems-2019-0013

PY  - 2020/01/01

AU  - Schulz A

AU  - Jain M

AU  - Butt T

AU  - Ballinger R

AU  - Eliasson L

AU  - Macey J

AU  - Peasgood T

AU  - Olaye A

AU  - Terzakis-Snyder I-A

AU  - Dyck I

AU  - West A

ED  - 

DO  - DOI: 10.1590/2326-4594-jiems-2019-0013

PB  - FapUNIFESP (SciELO)

VL  - 8

Y2  - 2025/04/04

ER  -